Young PARE evolves

Young PARE is evolving to help address the growing need for support and activities aimed at young people with rheumatic and musculoskeletal diseases (RMDs) across Europe and around the world. Through the introduction of our newly established committees, we’re building the foundations for an international movement, led for and by young people with RMDs, to help address the challenges facing our community.

 

Young PARE is a working group of the Standing Committee of People with Arthritis/Rheumatism in Europe (PARE), which is embedded within the European League against Rheumatism (EULAR). Young PARE aim to improve the quality of life of young people with rheumatic and musculoskeletal diseases (RMDs) by raising the profile of these conditions, and by creating a network of people who work in European countries (and beyond) on behalf of young people with RMDs.

The Young PARE Working Group

The Young PARE Working Group (also referred to as the core group) consists of eight representatives from different European countries. These individuals have first-hand experience of living with one or more RMDs and are passionate about supporting other young people with RMDs. The Working Group, chaired by Petra Balážová, takes strategic responsibility for facilitating the wider aims of Young PARE, while representing the Young PARE community.

The Young PARE Committees

The Working Group is now supported by five Young PARE Committees, each focusing on different aspects of Young PARE’s work. These are:

  1. Young PARE Country Liaison Committee;
  2. Young PARE Digital Communication Committee;
  3. Young PARE Education Committee;
  4. Young PARE Newsletter Committee; and
  5. Young PARE Visibility and Global Affairs Committee.

Country Liaison Committee (Chaired by Silvia Ostuzzi and Petra Balážová)

The Country Liaison Committee aim to encourage and support country liaisons of Young PARE, by keeping the network active, and increasing the visibility of the liaisons and their activities.

Digital Communication Committee (Chaired by Simon Stones, Tanita Wilhelmer and Sara Badreh)

The Digital Communication Committee aim to engage the entire rheumatology community, particularly young people with RMDs and patient organisations, as well as raising awareness of RMDs in general among members of the public.

Education Committee (Chaired by Wendy Olsder, Sara Badreh and Peter Boyd)

The Education Committee aim to improve the knowledge and skills among youth representatives (aged 35 years and under) working across Europe to support young people living with RMDs.

Newsletter Committee (Chaired by Peter Boyd)

The Newsletter Committee disseminates information to the rheumatology community, particularly the liaison network, about the work of Young PARE, specifically focused on supporting young people (under 35 years of age) with RMDs.

Visibility and Global Affairs Committee (Chaired by Lembe Kullamaa and Simon Stones)

Finally, the Visibility and Global Affairs Committee aim to ensure that Young PARE have a visible presence at EULAR-related activities and external events, and that Young PARE are aligned to the activities of related groups with shared interests, including the Emerging EULAR Network (EMEUNET); the European Network for Arthritis in Children (ENCA); and the European Patients’ Forum youth group.

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