Young PARE is a working group of the Standing Committee of PARE, which is embedded within EULAR, the European League against Rheumatism. Young PARE aims to improve the quality of life of young people with rheumatic and musculoskeletal diseases (RMDs) by raising the profile of these conditions, and by creating a network of individuals who work in European countries on behalf of young people with RMDs.
The Young PARE working group consists of eight representatives from different European countries. Under the leadership of the working group, five new committees have been established to cover the evolving work of Young PARE. These are as follows:
Country Liaison Committee (Chaired by Silvia Ostuzzi and Petra Balazova)
The Country Liaison Committee aim to encourage and support country liaisons of Young PARE, by keeping the network active, and increasing the visibility of the liaisons and their activities. Activities include: Managing the liaison database; keeping in contact with liaisons (past and present); and actively seeking new liaisons.
Digital Communication Committee (Chaired by Simon Stones, Tanita Wilhelmer and Sara Badreh)
The Digital Communication Committee aim to engage the entire rheumatology community, particularly young people with RMDs and patient organisations, as well as raising awareness of RMDs in general among members of the public. Activities include: Managing the Young PARE website; managing the Young PARE social networking sites (Facebook, Instagram, Twitter); and liaising with the EULAR Secretariat, EMEUNET and the World Arthritis Day team to co-ordinate efforts on social media, particularly during the EULAR PARE Conference, EULAR Congress, and EULAR World Arthritis Day Conference.
Education Committee (Chaired by Wendy Olsder, Sara Badreh and Peter Boyd)
The Education Committee aim to improve the knowledge and skills among youth representatives (aged 35 years and under) working across Europe to support young people living with RMDs. Activities include: Promoting the Knowledge Transfer Programme; administering the Virtual Knowledge Centre; liaising with the EULAR School of Rheumatology, liaising with the World Arthritis Day team; and co-ordinating efforts to ensure that young people are represented in the Stene Prize.
Newsletter Committee (Chaired by Peter Boyd)
The Newsletter Committee aim to disseminate information to the rheumatology community, particularly the liaison network, about the work of Young PARE, specifically focused on supporting young people (under 35 years of age) with RMDs. Activities include: Preparation of a quarterly Young PARE newsletter; Preparation of a special edition newsletter ahead of the EULAR Annual European Congress of Rheumatology, highlighting sessions and posters focused on young people with RMDs; and preparation of material (when appropriate) for Breakthrough, eBreakthrough, EMEUNEWS and the Health Professionals in Rheumatology newsletter.
Visibility and Global Affairs Committee (Chaired by Lembe Kullamaa and Simon Stones)
The Visibility and Global Affairs Committee aim to ensure that Young PARE have a visible presence at EULAR-related activities and external events, and that Young PARE are aligned to the activities of related groups with shared interests. Activities include: Embedding Young PARE into the EULAR Annual European Conference of PARE; setting up Young PARE social events at the EULAR Annual European Congress of Rheumatology; interacting with EMEUNET; interacting with the European Network for Arthritis in Children (ENCA); Interacting with the European Patients’ Forum youth group; and promoting the development of an international network of youth representatives in the RMD arena.
If you would like to express interest in joining one or more of the newly established Young PARE committees, please complete this form. A member of the Young PARE working group will be in contact in the near future to discuss your expression of interest further.
Please note: To be eligible to join one of the Young PARE committees, you should:
- Be aged between 18 and 35 years;
- Have experience or living with, caring for, or supporting someone with an RMD;
- Be willing to contribute equally to the team;
- Have a good knowledge of youth issues and RMDs in your country.
To express your interest in joining one or more of the above committees, visit the following link: https://goo.gl/forms/blJKOiOVgH1lZ9B23