Young PARE aims to improve the quality of life of young people with rheumatic and musculoskeletal diseases (RMDs) by raising the profile of these conditions, and by creating a network of individuals who work in European countries on behalf of young people with RMDs.
The Young PARE working group consists of a number of representatives from different European countries. These individuals have first-hand experience of living with an RMD, and are passionate about helping other young people with RMD.
European League Against Rheumatism (EULAR)
EULAR is an organisation which represents patients, health professionals and scientific societies of rheumatology of all the European nations. EULAR organises activities in areas of research, patient care and education, and is built-on a structure of committees and managerial bodies.
The committees and managerial bodies are: The General Assembly, the Executive Committee, the Standing Committees (including, for example: Standing Committee on Investigative Rheumatology, Standing Committee on Paediatric Rheumatology, Standing Committee of PARE) and Programme Committees (including: Scientific Programme Committee, PARE Programme Committee, Programme Committee of the Allied Health Professionals in Rheumatology).
The Executive Committee has to reflect the development of EULAR and its activities. The Standing Committees define, manage and perform the various activities of EULAR. The Programme Committees are responsible for the scientific, allied health professionals' and social leagues' programmes at the Annual European Congress.
The EULAR congress
The Annual European Congress of Rheumatology takes place once a year, in June, in one of the large European cities. The congress takes place over four days, and involves patients, health professionals and scientists meeting to exchange experiences, opinions and data. It is divided into a Scientific Programme, PARE Programme and Programme of the Allied Health Professionals.
Patients with arthritis and rheumatism in Europe (PARE)
Until 2007, PARE was known as "the campaigning arm of the EULAR social leagues". Since 2008, it has been fully integrated into EULAR and is one of the Standing Committees. PARE is composed of delegates of national organisations representing people with arthritis and rheumatism across Europe. They meet twice a year at the annual EULAR congress and the annual EULAR conference of PARE.
The aim of PARE is to improve the quality of life for the 120 million people in Europe living with arthritis and other musculoskeletal conditions. PARE wish to empower individuals to lead full and independent lives. To make this possible, PARE organises a number of different activities and programmes. These include EULAR educational visit programme, a programme at the EULAR Congress, and the EULAR annual conference of PARE.
First international youth strategy meeting
The first international youth strategy meeting was held in Tallinn, Estonia in October 2014. The aim of the meeting was to develop a youth strategy and a set of recommendations for a plan of action. Experienced and motivated youth representatives from across Europe participated in this meeting.
Emmi was one of the participants from Finland. She wrote about her experiences attending this meeting. Read more about this on our youth strategy page.